Abstrakt
Tekst obejmuje rozważania nad pożądanym, z etycznego punktu widzenia, doprecyzowaniem niejasności zidentyfikowanych w tekście dwugłosu obejmującym polskie rozwiązania prawne. Druga część dwugłosu została więc poświęcona roli świadomej zgody dawcy (donatora) na wykorzystanie w badaniach pobranych od niego próbek biologicznych, a przede wszystkim na użycie w celach naukowych zwłok. W rozważaniach dotyczących badań z użyciem zwłok na pierwszy plan wysuwa się pytanie o powody, dla których w ogóle należy uwzględniać przedśmiertną wolę zmarłych i czy chodzi o wolę domniemaną, czy też faktycznie wyrażoną; natomiast w dyskusji dotyczącej wykorzystywania próbek biologicznych zasadnicze znaczenie będzie miało pytanie o formę jaką powinna przybrać rzeczywista ? nie domniemana ? zgoda dawcy.
Bibliografia
Andrews L. B., Do the Dead Have Interests? Policy Issues for Research After Life (with D. Nelkin), 24 Am. J.L. & Med. 261 (1998). http://scholarship.kentlaw.iit.edu/fac_schol/10 [data dostępu: 29.072019]
Barilan Y. Michael, Bodyworlds and the ethics of using human remains: a preliminary discussion¸ ?Bioethics? Vol. 20, No 5 (2006), s. 233247
Baum Levenbook B., Harming Someone after His Death, ?Ethics?, Vol. 94, No. 3, 1984, s. 407419
Baum Levenbook B., Harming the Dead, Once Again, ?Ethics?, Vol. 95, No. 1, 1985, s. 162164
British Association of Biological Anthropology and Osteoarchaeology, , Code of Ethics, BABAO Workinggroup for ethics and practice 2010 https://www.babao.org.uk/assets/UploadstoWeb/codeofethics.pdf [data dostępu: 29.06.2019]
Callahan J. C., On Harming the Dead, ?Ethics?, Vol. 97, No. 2, 1987, s. 341352;
Feinberg J., The Moral Limits of the Crime Law Volume 1: Harm to Others, Print pub. date: 1987, Published to Oxford Scholarship Online: November 2003, s. 7894
Grady C., Eckstein L., Berkman B., et al., Broad Consent for Research With Biological Samples: Workshop Conclusions, ?American Journal of Bioethics?, 15 (9), 2015, s. 3442.
Harris J., Organ procurement: dead interests, living needs, ?Journal of Medical Ethics? (29) 2003, s. 130?134.
Iserson K.V., Life versus death: Exposing a misapplication of ethical reasoning, ?Journal of Clinical Ethics? (5) 1994, s.262.
Lawrence Susan C., Beyond the Grave ? The Use and Meaning of Human Body Parts: A Historical Introduction, Faculty Publications, Department of History, University of Nebraska ? Lincoln, January 1998
Partridge E., Posthumous Interests and Posthumous Respect, ?Ethics?, Vol. 91, No. 2 (Jan., 1981), pp. 243264
Partridge E., Posthumous Interests and Posthumous Respect, Ethics, Vol. 91, No. 2 (Jan., 1981), s. 243264
Pentz Rebecca D. et al., Ethics guidelines for research with the recently dead, ?Nature Medicine?, Vol. 11, No 11, 2005, s. 11451149
Steinsbekk K.S., K?reMyskja B., Solberg B., Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?, ?European Journal of Human Genetics? 21 (9) 2103, s. 897902
Szewczyk K., Bioetyka, Pacjent w systemie opieki zdrowotnej, Wydawnictwo Naukowe PWN, Warszawa2009, s. 151
The National Committee for Research Ethics on Human Remains, Guidelines for Research Ethics on Human Remains, The Norwegian National Research Ethics Committees English edition, July 2016
Tomasini F., Research on the recently dead: an historical and ethical examination, ?British Medical Bulletin? (85) 2008, s. 716
Wicclair Mark R., De Vita Michael A., Oversight of Research Involving the Dead, ?Kennedy Institute of Ethics Journal?, Vol. 14, No 2, 2004, s. 143164
Wicclair Mark R., Ethics and Research with Deceased Patients, ?Cambridge Quarterly of Healthcare Ethics? (17) 2008, s. 8797
Wicclair Mark R., Informed consent and research involving the newly dead. ?Kennedy Inst Ethics J? (12) 2002, s. 351?362
Wilkinson T. M. , Last Rights: the Ethics of Research on the Dead, ?Journal of Applied Philosophy vol. 19, No. 1, 2002, s. 3141
Barilan Y. Michael, Bodyworlds and the ethics of using human remains: a preliminary discussion¸ ?Bioethics? Vol. 20, No 5 (2006), s. 233247
Baum Levenbook B., Harming Someone after His Death, ?Ethics?, Vol. 94, No. 3, 1984, s. 407419
Baum Levenbook B., Harming the Dead, Once Again, ?Ethics?, Vol. 95, No. 1, 1985, s. 162164
British Association of Biological Anthropology and Osteoarchaeology, , Code of Ethics, BABAO Workinggroup for ethics and practice 2010 https://www.babao.org.uk/assets/UploadstoWeb/codeofethics.pdf [data dostępu: 29.06.2019]
Callahan J. C., On Harming the Dead, ?Ethics?, Vol. 97, No. 2, 1987, s. 341352;
Feinberg J., The Moral Limits of the Crime Law Volume 1: Harm to Others, Print pub. date: 1987, Published to Oxford Scholarship Online: November 2003, s. 7894
Grady C., Eckstein L., Berkman B., et al., Broad Consent for Research With Biological Samples: Workshop Conclusions, ?American Journal of Bioethics?, 15 (9), 2015, s. 3442.
Harris J., Organ procurement: dead interests, living needs, ?Journal of Medical Ethics? (29) 2003, s. 130?134.
Iserson K.V., Life versus death: Exposing a misapplication of ethical reasoning, ?Journal of Clinical Ethics? (5) 1994, s.262.
Lawrence Susan C., Beyond the Grave ? The Use and Meaning of Human Body Parts: A Historical Introduction, Faculty Publications, Department of History, University of Nebraska ? Lincoln, January 1998
Partridge E., Posthumous Interests and Posthumous Respect, ?Ethics?, Vol. 91, No. 2 (Jan., 1981), pp. 243264
Partridge E., Posthumous Interests and Posthumous Respect, Ethics, Vol. 91, No. 2 (Jan., 1981), s. 243264
Pentz Rebecca D. et al., Ethics guidelines for research with the recently dead, ?Nature Medicine?, Vol. 11, No 11, 2005, s. 11451149
Steinsbekk K.S., K?reMyskja B., Solberg B., Broad consent versus dynamic consent in biobank research: is passive participation an ethical problem?, ?European Journal of Human Genetics? 21 (9) 2103, s. 897902
Szewczyk K., Bioetyka, Pacjent w systemie opieki zdrowotnej, Wydawnictwo Naukowe PWN, Warszawa2009, s. 151
The National Committee for Research Ethics on Human Remains, Guidelines for Research Ethics on Human Remains, The Norwegian National Research Ethics Committees English edition, July 2016
Tomasini F., Research on the recently dead: an historical and ethical examination, ?British Medical Bulletin? (85) 2008, s. 716
Wicclair Mark R., De Vita Michael A., Oversight of Research Involving the Dead, ?Kennedy Institute of Ethics Journal?, Vol. 14, No 2, 2004, s. 143164
Wicclair Mark R., Ethics and Research with Deceased Patients, ?Cambridge Quarterly of Healthcare Ethics? (17) 2008, s. 8797
Wicclair Mark R., Informed consent and research involving the newly dead. ?Kennedy Inst Ethics J? (12) 2002, s. 351?362
Wilkinson T. M. , Last Rights: the Ethics of Research on the Dead, ?Journal of Applied Philosophy vol. 19, No. 1, 2002, s. 3141
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